Time in the hospital has allowed the team to help Denise to have less gastric pain. They continue to try to get the right formula and feed rate up to a good level so that she could go home. There is still a way to go before they can call it sufficient for her…
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Back a Step
It was very nice for Denise to be home. She was able to sleep in her own bed. However by midday Monday, 3/25 she was feeling weak and experiencing difficulty tolerating even the mild feed rate she was getting. On the scheduled visit to her Gastrointestinal Doctor that afternoon, they decided that IV fluids were…
Escape made good
Sunday 3/24 1pm:Denise is home from the hospital.Slow and steady remain the by words as Denise works to get enough nutrition from the J Tube to make a difference for her strength and health. She will be adding actual food soon, too. But later.Nonetheless, she’s glad to be home. welcome home Denise and Lloyd
Slow and steady plus walking
Saturday: Slowly increasing the rate of feed to get Denise tolerating as much as she can. Denise walked and walked to help her ciculation and digestion. She even had a chance to see the healing garden. No Saturday release, though.
Not on Friday
Though there was some hope for release on Friday 3/22, there’s still a ways to go before they let her out. She needs to be able to tolerate the increased feedings and tolerate drinking water to stay hydrated. (It’s been more than a week now with almost no water by mouth).
NG tube
The team started light feedings again through the J tube last night. After a day of walking and monitoring, the NG tube was removed. Though the NG tube had been helping earlier, it was a relief to have it taken out. Here’s some info on the NG tube.
New morning 3/20
Yesterday, 3/19 was a busy day.Stomach discomfort (an understatement for sure) was addressed with an NG tube to empty Denise’s stomach.That was the main event yesterday.Today, the team is working to get her digestive tract active. Once it is, then they’ll restart the feedings. To get her back on track.We had a chance to hear this…
St Pat’s day update
Thanks so much for all your prayers and thoughts! Denise’s feed rate is still low against the goal. So we expect that our departure may be delayed. Denise is still in pretty good spirits, still in pain and very hungry. She’s only been able to drink a little water and some broth. She has been…
Feedback day
Sunday March 17 The team started to advance Denise’s feed rate in the J tube, slowly to see how she tolerates it. Not very well. The formula was backing up into her throat, causing pain and burning. , So they have had to slow the feed. The goal is a rate 4x the current rate. …
Saturday AM
Saturday morning. March 16. Denise was solo last night. I went home and rested, slept. The team took the IVs out yesterday, and they’ve started the tube feeding at very slow rates. The principal discomfort is pain from the surgery, and some nausea. It is a balancing act to keep the pain tolerable and not…